Rare Diseases Day 2018


A disease or disorder is defined as rare in Europe when it affects fewer than 1 in 2000 and in  the USA when it affects fewer than 200,000 Americans. One rare disease may only affect  a handful of patients in the EU (European Union), and another as many as 245,000. In the EU, as many as 30 million people may be affected by one of over 6000 known rare diseases.

  • 80% of rare diseases have identified genetic origins whilst others are the result of infections (bacterial or viral), allergies and environmental causes, or are degenerative and proliferative.
  • 50% of rare diseases affect children.

Rare disease research is crucial to providing patients with the answers and solutions they need, whether it’s a treatment, cure or improved care. On 28 February 2018, the tenth Rare Disease Day will see thousands of people from all over the world come together to advocate for greater patient involvement in research on rare diseases.

To find out more go to https://www.rarediseaseday.org


Explore 200 years of mental health history online with The Retreat Archive

*Posted on behalf of the Borthwick Institute for Archives at the University of York*

The Retreat hospital archive has been digitised with funding from the Wellcome Collection and is now available online.


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Clinical Trials Day 2017

Clinical Trials day is celebrated around the 19th of May every year.

Both Royal Bournemouth Hospital and Poole Hospital have events planned for the 23rd of May.

The libraries have also shown support by creating some displays.

Read on for more information


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Stand up to Cancer – Friday 21st October

In 2012, Channel 4 and Cancer Research UK joined forces to launch Stand Up To Cancer in the UK, to accelerate life-saving cancer research. Led by the brightest stars in film, TV and music, it was the most successful charity fundraiser on UK commercial TV in its first year – ever.

Following on from that, the campaign has now raised over £23.8 million. The money raised so far has been spent funding clinical trials, which aim to improve survival rates and bring breakthroughs in labs to the patients who need them. Over 9,000 people have, or are about to benefit from these cutting edge trials, and this is still only the beginning.

Stand Up To Cancer is back this Autumn culminating in a live TV show on Channel 4 from 7pm on the 21st October

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Website of the month December! EU Clinical Trials Register

Do you need to know what work is being done in your field?  Find research in your area of interest with a quick and easy search at  https://www.clinicaltrialsregister.eu

EU clinical trials register

Results presented in summary form with links to detailed registry information including sponsorship, patient group, investigation network.

Similar trials information from USA at https://clinicaltrials.gov/